Wednesday, 11 September 2013

My Story...

بسم الله الرحمن الرحيم

In the name of Allah, the Most Gracious, the Most Merciful

My name is Maryam Sana Meo, I am 23 old daughter of M. Saleem Meo, I am From Pakistan, I done my graduation & I was enrolled in M.Sc. & Skip my Master program due to my Illness. I was willing to do PHD in Zoology. I was athletic & energetic since my childhood, I was 12 when I played Table Tennis. I was very active person not only in sports in my studies as well. 
I was very much excited about my Master Program. I didn't think anything was wrong and I chalked it up to being out of shape in my morning work schedule & my daily housekeeping task and hadn’t been performing much, gradually I started feeling weakness & fatigue. I was told by the doctors in Pakistan that I was anemic and needs iron. For a few months I took iron pills and also iron shots with no change in my condition. Later I was also told that I may be suffering from thalassemia. However, there were no clear answers and I continued to feel weak.

Finally, insisted to the doctors that some further tests be done to learn more about what was going on. When a bone marrow biopsy was conducted it revealed that I was suffering from a rare blood disorder called aplastic anemia. I and my family were devastated but we did not lose hope, as my motto in life is “nothing is impossible”.

We embarked on a journey… a journey of hope. After some more tests, I was told that I needs a bone marrow transplant from a matching donor. First, my family was tested to see if there was a match amongst my siblings. No one matched me. I was determined to live and so we started the search on our own…search for a donor, search for an affordable, respectable transplant center. We reached out to hospitals in India, England, US and some other countries. In the end, with the support from her family, friend [A] and a local NGO, We decided to go to Italy for my treatment. 

It was not easy. My family started saving money and finally after sometime was able to get admitted in a hospital in Italy. I am still worried about the funds & my cost of living in Italy but now I am focused on finding a donor to have a much needed bone marrow transplant. There are very few South Asians in the registry. Marrow types could be traced to your geographic origin and so most likely Maryam’s so matching donor may come from hoe own ethnic community. Unfortunately in Pakistan there is no unrelated transplant performed therefore we start search in abroad.
I am 23 years old, once I gets well I hopes to help patients like mine find there miracle. I wants to support them in any way I can, so they do not have to go through the struggles I went through for over two years before I found a meaningful treatment option. I will willing to work for donor marrow programs in my own country to make awareness in other to register them self & safe more precious life.  I vowed to work harder to get back to where I was before.

Contact me: maryam.sana@live.co.uk
Facebook: https://www.facebook.com/curemaryam 

2 comments:

  1. Hi Maryam, My name is Kayni and I also have Aplastic Anemia/MDS. I've had this disease since I was 26 years old, I am now 35. Be strong and keep fighting. I also started writing about my experience, please come visit when you have the time - http://kaynisbonemarrow.blogspot.com/.

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  2. In sha Allah
    In sha Allah
    you will get well soon and Allah will save many other lives because of you,
    in sha Allah very soon you will recover and return to a very normal and happy life.

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